The 2018 version of the standardized Request for Information (RFI) forms have been posted to the Practice Resource section of the ASBMT website and accessible here.
For those using the current paper form and pulling the data themselves, all items are the same for 2018.
You may be aware that there is now the availability to electronically transfer patient numbers and pre-calculated 100-day and 1 year survival data from the data that you submit to the CIBMTR. This can be accessed directly from the CIBMTR Portal website with a username and password that users in your center have registered with CIBMTR. New users or existing users needing help can contact the CIBMTR portal help desk by email at firstname.lastname@example.org. Once in the CIBMTR Portal, users can access their data by first selecting eDBtC (enhanced Data Back to Center) and then by selecting the Data for RFI button. Your data will be updated monthly and will populate several of the RFI tables, reducing your work load.
However, there are several issues that are being addressed for the 2019 RFI that are not in place yet for 2018, requiring that you carefully review the transferred data from the CIBMTR. This is particularly important for two disease states: multiple myeloma and CML.
For myeloma, none of the data will transfer due to changes in the TED forms that do not permit automatic calculation of risk category—so for 2018 you will need to do these by hand, both for the myeloma subgroup and the total patient population that includes these. We expect this will be fixed for next year, but you may still need to do this analysis of risk and put them into the correct boxes by hand in 2019 as 2018 data will still be incomplete.
For CML we need to harmonize the newer groups identified by the CIBMTR with the older RFI groups. So, this may be inaccurate if you are performing these transplants at your center. This is also underway. The data transfer otherwise seems to be quite accurate but again you should cross check with your own center's data. CIBMTR is providing as much data as possible to facilitate completion of the standard RFI.
Finally, the data you get back from the CIBMTR is only as good as the data you report. If you are behind in sending in data, the accuracy needed to complete the RFI will of course just not be there. Additional information, instructions and tip sheets are available at: www.cibmtr.org/DataManagement/AdminResources/DBtC/pages/index.aspx, www.cibmtr.org/Data/Request/pages/index.aspx or www.cibmtr.org/DataManagement/DataCollectionForms/Pages/index.aspx.